Feeling of the day: Grief
Grief is such a specific term right… one people associate with the death of loved one or pet. Grief by definition is a
Their Stories
Every HMERF journey is unique. In this section, patients and families share their personal experiences—offering honest reflections, hard-won insights, and hope to others navigating life with HMERF. We believe that every story helps build connection, awareness, and strength.
Stress… can you really say it’s only the feeling of the day?
Stress. I feel like everyone can relate to being overwhelmed. How can life not be overwhelming at one point or another, right? Throughout
My journey as a disabled entrepreneur – not the road most travelled, but one that’s mine
This story was originally published on https://www.musculardystrophyuk.org/about-us/stories/ Umbreen is a successful care home operator and company owner who lives with Charcot-Marie Tooth and
“It’s possible to make a difference now for people like Will”
This story was originally published on https://www.musculardystrophyuk.org/about-us/stories/ On Thursday 28 August, Sam Taylor, his wife Sue, and daughter Beth will set off to