Aynslie’s Story
To my Dad, The lasting memory of my dad is a very thin and frail man with a tracheostomy. I was 10 when…
Their Stories
Every HMERF journey is unique. In this section, patients and families share their personal experiences—offering honest reflections, hard-won insights, and hope to others navigating life with HMERF. We believe that every story helps build connection, awareness, and strength.
My journey as a disabled entrepreneur – not the road most travelled, but one that’s mine
This story was originally published on https://www.musculardystrophyuk.org/about-us/stories/ Umbreen is a successful care home operator and company owner who lives with Charcot-Marie Tooth and…
Feeling of the day: Grief
Grief is such a specific term right… one people associate with the death of loved one or pet. Grief by definition is a…
“It’s possible to make a difference now for people like Will”
This story was originally published on https://www.musculardystrophyuk.org/about-us/stories/ On Thursday 28 August, Sam Taylor, his wife Sue, and daughter Beth will set off to…
Stress… can you really say it’s only the feeling of the day?
Stress. I feel like everyone can relate to being overwhelmed. How can life not be overwhelming at one point or another, right? Throughout…
A Walking Medical Mystery
In some of my other posts, I mention having had health issues most of my life. Let me preface by saying that I…