My Journey with HMERF – Three Generations of Strength.
By Stacey People often ask me when my journey with HMERF began. The truth is… it began long before I was born. It…
Their Stories
Every HMERF journey is unique. In this section, patients and families share their personal experiences—offering honest reflections, hard-won insights, and hope to others navigating life with HMERF. We believe that every story helps build connection, awareness, and strength.
Aynslie’s Story
To my Dad, The lasting memory of my dad is a very thin and frail man with a tracheostomy. I was 10 when…
My journey as a disabled entrepreneur – not the road most travelled, but one that’s mine
This story was originally published on https://www.musculardystrophyuk.org/about-us/stories/ Umbreen is a successful care home operator and company owner who lives with Charcot-Marie Tooth and…
Feeling of the day: Grief
Grief is such a specific term right… one people associate with the death of loved one or pet. Grief by definition is a…
“It’s possible to make a difference now for people like Will”
This story was originally published on https://www.musculardystrophyuk.org/about-us/stories/ On Thursday 28 August, Sam Taylor, his wife Sue, and daughter Beth will set off to…