Their Stories

Every HMERF journey is unique. In this section, patients and families share their personal experiences—offering honest reflections, hard-won insights, and hope to others navigating life with HMERF. We believe that every story helps build connection, awareness, and strength.

Keeping The “A”

My mom has this phrase… “Anyone can get an A once, but keeping an A? That is hard work.” That is the best phrase I

Alone…not Alone

Sometimes we can forget how important it is to be part of something; a sense of belonging to a group.  With COVID being

Double Edged Sword

With the end of summer here and the wonderful beginning of autumn, the season change brings many mixed emotions for me.  August is