Dear Friends,

We’re  excited to share that we’ve updated the name of our foundation from ‘Casey’s Cure’ to ‘Alliance Against HMERF’! 

What began as a deeply personal journey to find a cure for Casey after her diagnosis with HMERF has blossomed into a powerful mission to support the entire HMERF community. 

This new name captures the global, united effort to not only find a cure to give thousands of people the chance to live long, healthy lives. It also demonstrates our ongoing commitment to support patients affected with HMERF and related rare diseases.

We’re incredibly grateful for your support and invite you to read more about our journey.

With hope and excitement,  

Alliance Against HMERF